Importance and Difficulties of Data Collection in Pediatrics

Authors

  • Cecilia Zubiri Pediatric Gastroenterologist, Hospital de Niños de La Plata Sor María Ludovica, Provincia de Buenos Aires. General Secretary of Nacional de Gastroenterología de la Sociedad Argentina de Pediatría. https://orcid.org/0000-0001-6494-2839
  • Luciana Guzmán Chief of the Children's Gastroenterology Department of Hospital de Niños de La Plata Sor María Ludovica, Provincia de Buenos Aires.

DOI:

https://doi.org/10.52787/agl.v53i2.330

Keywords:

Data collection, pediatrics

Abstract

Research in pediatrics focuses on the study and treatment of diseases in children and adolescents.1 Data collection is a fundamental part of the research, which allows for a better understanding of the diseases and treatments used in clinical practice.

In this editorial, we intend to highlight the importance of data collection in pediatric research, as well as the difficulties we may face in this age group.2

References

-1. Crowe S, Reid A, Knox D, Woodcock A, Siddiqui A, Vögele C. Developing and piloting a tool to assess the quality of data collection in clinical studies in pediatrics. Contemp Clin Trials. 2015;45(Pt B):251-256.

-2. Abshire M, Dinglas VD, Cajita MIA, Eakin MN, Needham DM, Himmelfarb CD. Participant retention practices in longitudinal clinical research studies with pediatric populations: A systematic review. Contemp Clin Trials. 2018;68:55-66. DOI:10.1186/s12874-017-0310-z

-3. Jaeschke R, Guyatt GH, Sackett DL. Users' guides to the medical literature. III. How to use an article about a diagnostic test. B. What are the results and will they help me in caring for my patients? The Evidence-Based Medicine Working Group. JAMA. 1994;271(9):703-707. DOI:10.1001/jama.1994.03510330081039

-4. Bines JE, Kohl KS, Forster J, et al. Acute intussusception in infants and children as an adverse event following immunization: case definition and guidelines of data collection, analysis, and presentation. Vaccine. 2004;22(5-6):569-574. DOI:10.1016/j.vaccine.2003.09.016

-5. Gliklich RE, Dreyer NA, Leavy MB. Registries for Evaluating Patient Outcomes: A User's Guide [Internet]. 3rd ed. Agency for Healthcare Research and Quality (US); 2014. Available from: https://www.ncbi.nlm.nih.gov/books/NBK208616/

-6. Higgins JPT, Green S. Cochrane Handbook for Systematic Reviews of Interventions. Version 5.1.0. The Cochrane Collaboration; 2011.

-7. Loannidis JPA. Why most published research findings are false. PLoS Med. 2005;2(8):e124. DOI:10.1371/journal.pmed.0020124

-8. Tricco AC, Lillie E, Zarin W, et al. A scoping review on the conduct and reporting of scoping reviews. BMC Med Res Methodol. 2016;16(1):15. DOI:10.1186/s12874-016-0116-4

-9. Zarin DA, Tse T, Sheehan J. The proposed rule for U.S. clinical trial registration and results submission. N Engl J Med. 2015;372(2):174-180. DOI:10.1056/NEJMsr1414226

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Published

2023-06-30

How to Cite

Zubiri, C., & Guzmán, L. (2023). Importance and Difficulties of Data Collection in Pediatrics. Acta Gastroenterológica Latinoamericana, 53(2), 101–103. https://doi.org/10.52787/agl.v53i2.330

Issue

Vol. 53 No. 2 (2023): Acta Gastroenterológica Latinoamericana

Section

Editorials

License

Copyright (c) 2023 Cecilia Zubiri, Luciana Guzmán

Creative Commons License

This work is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License.